The hardest thing about being sick and physically weak is the way it has prevented me from doing normal everyday things. I hate being limited in my gardening, prevented from my dancing (which is like telling me to stop breathing) and the way it has inhibited my day to day relationship with Little B.
I hate not being able to play soccer with him, or pick him up, or even having to lie down because I literally cant physically stand anymore that day. But I refuse to be defeated or brow beaten by this.
So how do I keep my spirits up? With friendship, love and positivity.
Friends have been amazingly supportive. One friend gave me all of her boy’s old size 3 & 4 clothes. Another lent me her small sized clothing till I could get a few things together. My closest friend has just let me talk and talk until I felt calm again as our boys played together.
Granny B has been a dream – letting us move in, being a sounding board and an amazing emotional support. Mr B has been my rock - he has loved, supported and cared for me through the start of getting sick until this diagnosis. Then when we moved house, he did all the back breaking physical labour so I could still have a vegie garden to tend.
I am surrounded by love, friendship and support. This allows me to charge on and stay positive. To fight the good fight even when I’d rather scream than see another doctor or have another blood test.
I focus on and enjoy the little things everyday – being out in the sunshine, reading a good book, learning to sew, cuddles with Little B, chatting with friends and listening to great tunes. I will get better. I simply refuse to contemplate any other option!!